Home' Southern Health News : June 2016 Contents State prostate cancer registry
reaches new milestone
BY FRAN GALLARDO
South Australia’s prostate cancer registry has reached a new milestone with more
than 11,000 men now recruited into its research database.
Andy Powers, 58, has fond
memories of his late father, a former competitive
table tennis player, who at age 70 died of
Andy’s father died within three months of
diagnosis and 11 years later, Andy would be
diagnosed with the same cancer.
His father’s rapid death provided Andy with
an important reminder to regularly have his
Prostate-Specific Antigen (PSA) levels checked.
Andy didn’t have any symptoms when he
was tested in 2013, but had a ‘funny feeling’
something was not quite right.
“If my father hadn’t had it, I would’ve had very
little knowledge about the importance of getting
checked,” Andy explains.
“I had no symptoms whatsoever, nothing was
picked up in the MRI scans but it turned out my
cancer was very aggressive. After two biopsies, I
was diagnosed and started my treatment, which
included surgery and hormone therapy,” he said.
“It’s been an incredibly overwhelming
As part of the registry, Andy hopes his
experience and post treatment recovery will help
others understand more about the lasting side
effects of prostate cancer.
The database aims to provide vital clues into prostate cancer
survival times and treatment trends.
The South Australian Prostate Cancer Clinical Outcomes
Collaborative (SA-PCCOC) is based at Repatriation General
Hospital (RGH) and manages the state prostate cancer registry.
SA-PCCOC is also participating in the Prostate Cancer
Outcomes Registry – Australia and New Zealand – the world’s
first and largest national prostate cancer clinical registry.
The SA registry was established in 1998 and captures a
comprehensive data set about clinical outcomes, survival
times and times of cancer recurrence, while also investigating
patient reported outcomes, such as symptoms men may
experience after treatment.
Chair of the SA-PCCOC Kim Moretti said South Australia can
be very proud of the registry which is improving the outcomes
of patients by enabling clinicians to select the most evidence-
based treatment options for each patient based on the data
which is being collected.
“Recruiting more than 11,000 men to the registry is a
remarkable achievement and a real vote of confidence in this
research from men around South Australia,” Kim said.
“Very few registries anywhere in the world have this level of
participation and depth of data.”
RGH Senior Urologist Kym Horsell said five year survival
from prostate cancer has increased from 84 per cent for men
diagnosed 15 years ago, to 96 per cent for men diagnosed in
the last five years.
“The likelihood of prostate cancer reoccurring after
radiotherapy or surgery is also significantly lower now than 10
to 15 years ago,” Dr Horsell said.
“Better outcomes are due to more men being diagnosed at an
earlier stage and capturing data has a big role to play in this,”
“The registry allows us to have unparalleled insight into what
really happens to men who have prostate cancer, not just
from a clinical perspective, but also hearing from the men
about how they feel before and after treatment.”
International prostate cancer charity Movember Foundation
will feature SA-PCCOC's data in its inaugural report, which
was released in time for Men's Health Week in June 2016.
The report includes contributions from Monash University,
SAHMRI and SA-PCCOC.
Supported by Movember, the national registry report will see
South Australian data merged with Victorian data to look at
treatment patterns across the two states. Early results of this
merged information show that while surgery remains the
most common treatment for prostate cancer, there has been
an increase in the number of men being monitored in South
Australia and Victoria rather than receiving immediate curative
treatment in recent years.
More Australian men
die from PROSTATE
women die from
On average, NINE
Australian men die
from prostate cancer
funding the world’s
clinical registry and
success looks like
for prostate cancer
LIFE BEYOND THE
10 / JUNE 2016 / SOUTHERN HEALTH NEWS
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